PDF Ebook Parenting an Adult with Disabilities or Special Needs: Everything You Need to Know to Plan for and Protect Your Child's Future, by Peggy L
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Parenting an Adult with Disabilities or Special Needs: Everything You Need to Know to Plan for and Protect Your Child's Future, by Peggy L
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Every parent of a child with disabilities knows just how overwhelming and frustrating it can be. When these children enter adulthood, the difficulties can become even greater. Many parents are tempted to keep their children at home, believing that they will be safer and happier under their care. But adults with special needs deserve the same chance at a happy life as everyone else. As the mother of an adult child with disabilities, Peggy Lou Morgan has years of experience dealing with the challenges these adults face every day. She believes that the most loving thing parents can do for their children is to prepare them to leave home in a way that works best for them. In "Parenting an Adult with Disabilities or Special Needs," she gives parents invaluable advice on:
teaching their adult child to be a self-advocate - helping their child cope with relationships - helping their child find a good vocational program - finding an apartment and a roommate - understanding government programs that can help their children while they become more independent
Compassionate and thorough, this guide will help readers to ensure that their children leave the nest with confidence and joy.
- Sales Rank: #669269 in eBooks
- Published on: 2009-01-22
- Released on: 2009-01-22
- Format: Kindle eBook
Review
"When you're up to your eyebrows in therapists and IEPs and doctor visits and research, it's hard to imagine a time when you'll have to deal with issues like where your adult child is going to live and work and find friendship. Often, we put those thoughts off -- but that time comes more quickly than you think, and without some advance preparation, it's rough on everyone. Morgan, author of Parenting Your Complex Child, provides a calm, experienced voice to lead you through." --About.com/Parenting Special Needs Children (http://specialchildren.about.com/)
"The million dollar question for parents of children with disabilities is 'What happens to my child once I'm gone?' There is so much to do, so much to prepare, to plan for, to worry about especially concerning a child with complex disabilities and multiple health concerns. These nagging questions are quieted with preparation for his or her future while you are still able to advocate on their behalf. Peggy Lou Morgan makes all of these tasks seem a little more manageable in her clear, comprehensible and incredibly informative book." --Education Review
“…wealth of information, advice, and strategies to help parents provide their son or daughter with a solid foundation for a fulfilling life.” –Education Digest
“The sample caregiver’s manual in the appendices is important for anyone working on this daunting task.” --Brain, Child Magazine
From the Back Cover
Letting your child leave the nest is never easy. If you’re the parent of a child with disabilities or special needs, letting go is even harder. You worry about whether he will be able to make it on his own, and most important, get the help he needs if something goes wrong. How will she perform in her first job? Will she be able to make friends? Many parents are tempted to keep their children at home, believing the children will be safer and happier under their care. But adults with special needs deserve the same chance at a happy life as everyone else. As the mother of an adult child with disabilities, Peggy Lou Morgan has years of experience dealing with the challenges you face every day. She believes the most loving thing parents can do is to prepare their children to leave home in a way that works best for them. In Parenting an Adult with Disabilities or Special Needs, she gives you invaluable advice on:
— teaching your adult child to be a self-advocate
— helping your child cope with relationships
— helping your child find a good vocational program
— finding an apartment and a roommate
— understanding government programs that can help children while they become more independent
Compassionate and thorough, this guide will help you make sure that your children leave home with confidence and joy.
“Peggy Lou Morgan has tackled that big question—‘Who will love my child after I am gone?’ She sends a dart through the belief that parents can or should rely on the service system to look after their child. While professionals can be helpful, she reminds us of the critical importance of helping our children to connect with family and the larger community.”
— David Pitonyak, Ph.D., founder, Imagine, www.dimagine.com
“Morgan’s life experience and provocative ideas provide a comprehensive approach to assist parents in achieving the highest quality of life for their child with special needs. While throughout her book she provides practical advice about government benefits and the use of professional services, she remains committed in her belief that the success of any plan to maximize the individual capacities and dreams of a special needs child lies with the parent.”
—Douglas A. Harrison, estate planning attorney, Portland, Oregon
“. . . Peggy gets to the heart of the complexity of the task of planning for the future with compassion, common sense, attention to detail, and deep wisdom.”
—From the foreword by Dr. Beth Mount, co-inventor, Person-Centered Planning
Peggy Lou Morgan has worked with the disabled for more than 35 years, including more than 10 years setting up services and placements for her clients. Morgan adopted a multiply disabled child 24 years ago and is the author of Parenting Your Complex Child. She lives in LaPine, Oregon.
About the Author
Peggy Lou Morgan (LaPine, OR) has worked with the disabled for nearly 35 years, including more than 10 years setting up services and placements for her clients. Morgan adopted a multiply disabled child 20 years ago and is the author of Parenting Your Complex Child (978-0-8144-7316-0).
Most helpful customer reviews
2 of 2 people found the following review helpful.
much needed
By woodswitch209
i just began reading this today, but am already glad to have it. i'm raising my Autistic nephew, who will be 14 soon, and thanks to rthis book i'll have a better idea of how to prepare . . .
4 of 5 people found the following review helpful.
Long waited answers
By Patricia E. Groff
I have long wanted a resource to help navigate for what and when to prepare for my son's future with Ausberger's Syndrome. This is great! It answers many questions about when to start planning and what choices can be explored. Thank God for this book!
3 of 4 people found the following review helpful.
One Person's Journey
By Francine Long
This book contains some good points to consider but it is limited to the perspective of one parent. Still, her experiences are valuable to those just coming to grips with the fate of their adult child with disabilities. That "someday" creeps up on you and it is easy to think you have done all you need to do such as setting up a special needs trust and appointing guardians after you are gone. That is only the beginning and you may find that you have a whole new phase of advocacy for your child beyond when they were first diagnosed and you were in your find-a-cure/therapy phase. A good book with more specifics about a wider variety of the issues you may face is: Moving Out by Dafna Krouk-Gordon.
Another point that I would like to make is the skewing of advice for higher functioning individuals or for those with more physical than cognitive disabilities. My adult son with autism is nonverbal with an IQ in the 20-25 range. You can't ask him what he wants and he has little comprehension of anything except what food he likes to eat and that he likes to go for rides in cars. These advice books always assume a higher level of input and awareness than many of those with developmental issues actually possess.
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